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Name: Leah Forde
Age: 20
Year of the Fix: 2014
Location: Middlesex
Campaign: To help teenagers with cystic fibrosis prepare for adult life with the condition

I have cystic fibrosis (CF) – a genetic condition that causes the lungs and digestive system to become clogged up. 


When you’re younger, all your care and treatment for CF is provided by a paediatric team, who get to know you really well.


But when you become a teenager, this changes and your treatment is transferred to an adult service where you’re encouraged to take more responsibility for your own medication.


I found this transition really difficult and although I was given a DVD to help me understand how my care would change, I was still left feeling scared.


With the help of Fixers I want to create my own film to reassure young people about this transition.


I’d like it to include other young cystic fibrosis patients discussing their experiences.

Here is a list of Fixers helping me with my Fix:

Jake Morrow
Sam Richardson
Laura Taylor

Royal Brompton Hospital
The staff at Royal Brompton Hospital support my Fix. Some of the team agreed to be interviewed for my documentary and they allowed me to film there.

September 2014
My Fixers film was shown to around 150 healthcare professionals at a conference organised by the British Association for the Study of Liver in Gateshead on 16th September.


I've had some great feedback from people upon completion of my film and you can read some of these comments below:


Ruth'That was very interesting! Cystic fibrosis has touched my life like so many other people, the nurses do a marvellous job, thank you.'


David: 'Great video Leah. Well made and it's a great insight into the illness and the transition. You are a natural in front of the camera.'


Helen: 'Well done Leah. This will be such a help to so many. You're amazing!'

Anthony: 'Very interesting. I can honestly say transition was the best thing that ever happened in my life. I am now fully committed and motivated to moving on and taking 100% responsibility for my health and taking the pressures out of my parent's lives. I personally feel my personal life has taken leaps forward in the last three years since I went through the transition process.'

Suzanne: 'I liked the point the mum made about how after transition her daughter thought more about what she was going to do with her future. It is a very difficult time but you look back and you realise how much your child matures during transition.'


Gautam: 'Really glad to see others like me doing so well. Despite all the difficulties.'


January 2014

The Cystic Fibrosis Trust have offered feedback on my film on YouTube. They describe the video as 'brilliant.'



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